Fall News & TSW Information
Hello ITSAN Community and #StayAtHome Experts!!
Welcome to the ITSAN Fall Newsletter. Our community has grown significantly over the last 12 months; we count over 7500 people currently.
ITSAN’s mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals. ITSAN is the only 501(c)(3) non-profit charity serving the global TSW Syndrome community as a resource for the individual, the caregiver, and the healthcare provider.
Notice anything new on the ITSAN website? Kathryn Tullos, RN has been spearheading the effort to update research links, add a News section, and additional functionality into the site, which is getting around 11k visitors a month. To learn a little more about the ITSAN board working behind the scenes for the TSWS community, please visit the About ITSAN tab on ITSAN.org. And if ITSAN has helped you, please consider writing a review at Great Nonprofits so we stay Top Rated for 2020.
Thank you for completing our Q1 Survey! ITSAN put out a survey in February to the community to better understand what you want and need from us. We had around 100 people participate in this quick survey, and many of you want to hear more healing stories, more personal experience, and more medical information. Check.
Members in the News: Kristi Chun and her family were featured in ABC’s KITV4 station out of Honolulu, Hawaii last year in a piece called “From childcare to medical care: Honolulu family faces painful reaction to topical cream”
ITSAN Working for Change – – Recall that last fall, ITSAN was one of five patient advocacy groups for the first Patient-Focused Drug Development meeting with the FDA about eczema treatments; many of those in the general TSW community came out in full support of the experience and burden of living with a condition for which current drug therapies have fallen short for. The survey received over 1500 survey responses from 58 countries around the world. The report from this meeting and the survey were recently published; the report is called More Than Skin Deep and the full report is available for your perusal. Just want the quick recap? This is for you! (more…)